What If?

This section of the website contains the experiences of families facing the end of their children's lives as they appeared in the book "Caring For Your Child With Hydranencephaly". I have also included a page of links in each section to the sites containing the information that was in the book.

Please note: Much of the material in all 5 parts of this chapter may be disturbing or upsetting for families. As children with Hydranencephaly always die at too young an age I’ve chosen to give a fairly detailed account of options available at all stages of the end of life journey. I’m making the table of contents for each section very specific so that you can go directly to the information you want and avoid sections you’d rather not read at this time. Please know that the information is here not to upset or scare you but to offer support for families who need it.