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Myths about Hydranencephaly

Myths Brochure

Dear Doctor Letter

Video Footage of Children With Hydranencephaly

 

On this page you will find links to video of the children. These are of the children only, not set to music as are the clips on the video clips page

 

It is hoped that seeing the children doing various things will help encourage new families. Please keep checking back as I will add more links as I get them.

Brennan, age 4, US:
Brennan restless


Brennan giggles

Brennan play

January 2008
http://video.google.com:80/videoplay?docid=7047755337670875697 

http://video.google.com:80/videoplay?docid=-2823645065820977941 

Lara, age 6 months, Germany
http://www.hydranenzephalie.araneae-online.net/grafiken/2006-08-25_1.AVI (this downloads onto your computer)

Kayda, 12/2/88-6/23/00, Canada
Kayda in Toronto 1994

Kayda's 6th Birthday party

Kayda's 6th Birthday party #2  (shows her turning to the sound of my voice)

Kayda's 6th Birthday party #3 (shows her chewing her dinosaur and touching it with her hands)

Kayda's 6th bd  #4 (another example of her with her dinosaur)

Kayda playing with tube (this is the day she discovered her feeding tube. She wouldn't leave it alone after that and ended up with it bleeding so had to go to a Mickey tube)

Kayda new toy

Kayda and her hands: set to music

Noah, 5 years, Tasmania:
Laughing Feb. 2005

In his little room, Jan. 2008:  http://www.youtube.com/watch?v=od7z3DaYcQQ 

Heather, 1/18/01-3/2/07

Heather in a Quadriciser at the Disability Convention in 2005

The following are short clips of the above long video:
Getting Heather in to the Quadriciser

Paris, age 3, US
http://video.yahoo.com:80/video/play?vid=1754590&fr=yvmtf 

http://video.yahoo.com/video/play?ei=UTF-8&gid=3192084&vid=1754634&b=0 

Sean, age 1, US
http://www.youtube.com/watch?v=rMcKHjL22EA  

 

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August 16, 2001- January 12, 2005

This website is funded in loving memory of Jason S. by his mother Kammy

The information on this site is provided by families, caregivers, and professionals who are or have been caring for a child with Hydranencephaly.

Please report any broken links or missing photos to angelbearmom@shaw.ca