Site Map

Home

For new families

Hydranencephaly
Information 

Our Rays of Sunshine

Resources in caring for a Child with Hydranencephaly

Physical Care of a Child with Hydranencephaly

Health Conditions

Prenatal Diagnosis

For Grieving Families

Difficult Times Pt. 1: Taking Care of You

Difficult Times: Pt 2: What If?

About us

News

Contact a Family

Book: Caring for Your Child With Hydranencephaly

Hydranencephaly data base

Contact Barb

Printed Materials

Fact Sheet

Fact Sheet Brochure

Frequently Asked Questions

FAQ Brochure # 1

FAQ Brochure # 2

FAQ Brochure # 3

FAQ Brochure # 4

FAQ Brochure # 5

FAQ Brochure # 6

FAQ Brochure # 7

Myths about Hydranencephaly

Myths Brochure

Dear Doctor Letter

Taking Care of You:
Links to Online Information on This topic

The full text of the following sites was used in the book "Caring For Your Child With Hydranencephaly". They're here for your reference.

Adjustment
http://www.cca.org.au/content.asp?p=77

Grief and Loss
http://www.cca.org.au/content.asp?p=439

Dealing with Family and friends and your special needs child... Remember they hurt too
http://heartsofcourage.com/familyfriends.html

10 Things You Can To Help You Cope With The High Amounts Of Stress In Your Life...
http://heartsofcourage.com/copingwithstress1.html
http://heartsofcourage.com/copingwithstress2.html

Facing the Reactions of Others
http://www.cca.org.au/content.asp?p=81

Changes of Professionals
http://www.cca.org.au/content.asp?p=82

Creating a support system for yourself
http://heartsofcourage.com/creatingsupportsystem.html

Isolation, Depression, Fatigue - Asking for Help
By Nancy Miller, Ph.D.
http://www.specialchild.com/archives/fi-023.html

Reviewing Your Personal Support Network
By Nancy Miller, Ph.D.
http://www.specialchild.com/archives/fi-008.html

Taking Care of YOU!
By Nancy Miller, Ph.D.
http://www.specialchild.com/archives/fi-012.html

Child Care for the Child with Disabilities
http://www.specialchild.com/archives/ia-040.html

Respite Care for Families Raising Children with Disabilities
http://www.specialchild.com/archives/ia-048.html

Other pages in this section:
Taking Care of You:
Reactions to Having a Child with a Disability
Families and Friends
Managing Stress
Reactions of Others
Should we have another child

Subscribe to the Hydranencephaly Mailing list

August 16, 2001- January 12, 2005

This website is funded in loving memory of Jason S. by his mother Kammy

The information on this site is provided by families, caregivers, and professionals who are or have been caring for a child with Hydranencephaly.

Please report any broken links or missing photos to angelbearmom@shaw.ca