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Hydranencephaly
Information

Our Rays of Sunshine

Resources in caring for a Child with Hydranencephaly

Physical Care of a Child with Hydranencephaly

Health Conditions

Prenatal Diagnosis

For Grieving Families

Difficult Times Pt. 1: Taking Care of You

Difficult Times: Pt 2: What If?

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Hydranencephaly Message Board

Book: Caring for Your Child With Hydranencephaly

Hydranencephaly data base

Hydranencephaly Survey Links

As of July 14, 2007 the Hydranencephaly survey is now complete. No further data will be collected. Thank you to everyone who took the time to complete this very long survey. Once the data is analyzed we will have a much clearer picture of what children with Hydranencephaly are like.