|

Angel
Teal's Story
June
12-Nov. 14, 1998
Teal came to us as
a foster placement in August 1998. She was barely 5 pounds and had a
Gtube for feeding. A VP shunt had been placed to drain fluid from her
head. She had been born premature and was diagnosed as hydranencephalic.
She was a beautiful little girl. Our family was so excited about her and
grew to love her very much.
In November she
was hospitalized with an infection somewhere. After much testing she was
found to need a shunt revision, which is not unusual. Before plans could
be made for treatment the worker from the county she was from went to a
judge and had a Do Not Treat or resuscitate order signed. Our hands were
tied....
We took Teal home
and held her and watched her die over a 2 week period. That was a very
hard thing to do ....It was a hard thing ..no an impossible thing to
justify. She could have died while having surgery but at least we would
have tried to give her the help that was available. Having 2
adopted daughters with this diagnosis and knowing the joy they have
been, I knew I was not willing to give up on Teal. Elizabeth
was 4 years old at that time and our daughter Melissa
had died in 1997 at 15.5 years of age. We feel that many who are in
decision making positions do not value the lives of a hydranencephalic
child.
We are thankful
for the time we had with her and wanted to recognize her life by sharing
her story.
  

|