Site Map

Home

For new families

Hydranencephaly
Information 


Our Rays of Sunshine

Resources in caring for a Child with Hydranencephaly

Physical Care of a Child with Hydranencephaly

Health Conditions

Prenatal Diagnosis

For Grieving Families

Difficult Times Pt. 1: Taking Care of You

Difficult Times: Pt 2: What If?

About us

News

Meet other families:




 

Contact a Family

Hydranencephaly Message Board

Book: Caring for Your Child With Hydranencephaly

Hydranencephaly data base

 

 

 

Kentucky Resources

The information in this section was obtained from the following sites:
http://cshcnleaders.ichp.edu/TitleVDirectory/PDF-Files-May-2003/Kentucky_2002.pdf https://performance.hrsa.gov/mchb/mchreports/link/statelink_result.asp http://www.fns.usda.gov/wic/Contacts/statealpha.HTM
http://www.yellowpagesforkids.com/help/ky.htm
http://www.cms.hhs.gov/medicaid/state.asp?state=KY
http://www.nichcy.org/stateshe/ky.htm
http://www.library.tmc.edu/childrenshospitals.html
http://www.respitelocator.org/k2states.htm http://eparent.com/resources/directories/directories_van.cfm

 Title V, Children With Special Health Care Needs Program
CSHCN Contact
Eric Friedlander
CSHCN Director
Commission for Children with Special Health Care Needs,
982 Eastern Parkway

Louisville, KY,40217
(502) 595-4459 ext. 285
(502) 595-4673 fax
Email: eric.friedlander@mail.state.ky.us

For more information on the program and eligibility criteria go to:
http://cshcnleaders.ichp.edu/TitleVDirectory/PDF-Files-May-2003/Kentucky_2002.pdf

Medicaid
Kentucky Medicaid Office
Cabinet for Health Services of Kentucky
P.O. Box 2110
Frankfort
, KY 40602-2110
Local: 1-502-564-2687
Toll-Free: 1-800-635-2570
Toll-Free TTY: 1-800-775-0296
Fax: 1-502-226-1898

Website: http://chs.ky.gov/dms/

For more information:
http://www.cms.hhs.gov/medicaid/state.asp?state=KY

WIC
Fran Hawkins, MS, RD, LD, Director 
Nutrition Services Branch 
Division of Maternal and Child Health 
Kentucky Department of Public Health 
Cabinet for Health Services 
275 East Main Street  HS2W-C
Frankfort
, KY  40621 
telephone:  (502) 564-3827 
toll-free in-state:  1-800-462-6122
fax: (502) 564-8389 
email: Fran.Hawkins@mail.state.ky.us
website:  http://chs.ky.gov/publichealth/wic-program.htm
 

State CHIP Program
(health care for low-income uninsured children)
KCHIP
(877) 524-4718; (877) 524-4719 (TTY)
(800) 662-5397 (Spanish)
Web: www.chs.ky.gov/kchip/

Education
State Department of Education: Special Education
Judy Mallory, Director
Division of Exceptional Children's Services
Kentucky Department of Education
Capitol Plaza Tower, 8th Floor
500 Mero Street
Frankfort, KY 40601
(502) 564-4970
E-mail: jmallory@kde.state.ky.us
Web: www.education.ky.gov

Programs for Infants and Toddlers with Disabilities: Ages Birth through 2
Steve Davis, M.D., Director
First Steps
Department for Public Health
Division of Adult and Child Health Improvement
275 E. Main Street, HS2G-B
Frankfort, KY 40621
(502) 564-2154; (800) 232-1160
E-mail: steve.davis@ky.gov
Web: www.chs.ky.gov/publichealth/firststeps%202004/

Programs for Children with Disabilities: Ages 3 through 5
Dr. Kim Townley, Acting Director
Division of Early Childhood Development
Department of Education
500 Mero Street, Capital Plaza Tower, 1st Floor
Frankfort, KY 40601
(502) 564-8341; (866) 294-0135
E-mail: ktownley@kde.state.ky.us
Web: www.education.ky.gov

Special Education Procedures Manual
Division of Exceptional Children Services
http://www.kde.state.ky.us/osis/children/sepm/default.asp

Hospitals/Rehabilitation Facilities
Lexington Shriners Hospital
1900 Richmond Road
Lexington, KY 40502
Telephone 859-266-2101
Fax 859-268-5636
http://www.shrinershq.org/shc/lexington/

University of Kentucky Children’s Hospital
http://www.mc.uky.edu/chuk/index.html  (I couldn’t find an address or phone # for this hospital)

Kosair Children’s Hospital
231 East Chestnut
Louisville, KY 40202
Phone # 502 629-6000
Website: http://www.kosairchildrens.com/

Cerebral Palsy K.I.D.S. Center
Mary Thompson
982 Eastern Parkway
Louisville, KY 40217
(502) 635-6397; Fax: (502) 635-1147
E-mail: mthompson@cpkidscenter.com
The K.I.D.S. Center is an outpatient treatment facility that offers physical, occupational and speech therapy services; community referral and resource information; parent/guardian support group; family support, activities and education; orthopedic clinic; wheelchair and seating assessments; casting and splinting ; therapeutic horseback riding programs; sensory motor gym; pediatric therapy equipment; and a physical fitness gym. We serve clients with Cerebral Palsy as well as all other types of developmental delays and disabilities ages birth to 17 with special emphasis on birth to five population. Clients must obtain a referral and prescription from their physician before assessment and treatment services are scheduled or be eligible for First Steps services (Kentucky's Early Intervention Program). The Center accepts some private insurances, Passport, private pay and we offer a sliding scale to income eligible families.

Jordans' Gait Stables, Inc.
Donna Means
515 Dry Ridge Road
Eastview, Kentucky 42732
(270) 862-2290; (240) 255-0854
E-mail: jordansgait@hotmail.com
Web: http://jordansgaitstables.homestead.com/jordansgaitstables.html 
A 501C(3) non-profit organization providing Free therapeutic horseback riding for the physically and mentally challenged of all ages, race and sex in Kentucky.

Specific Disability Resources
Blind/Visually Impaired
Stephen Johnson, Executive Director
Office for the Blind
Department of Workforce Investment
P.O. Box 757
Frankfort, KY 40602-0757
(502) 564-4754; (502) 564-2929 (TTY)
E-mail: stephen.johnson@ky.gov
Web: http://blind.ky.gov

Cathy Johnson, Director
Kentucky Instructional and Diagnostic Services
Kentucky School for the Blind
1867 Frankfort Avenue
Louisville, KY 40206
(502) 897-1583
E-mail: cjohnson@ksb.k12.ky.us
Web: www.ksb.k12.ky.us

Jay Stiteley, Director
American Foundation for the Blind-Midwest
401 N. Michigan Avenue, Suite 350
Chicago, IL 60611
(312) 396-4420
E-mail: chicago@afb.net
Web: www.afb.org

Department for the Blind
P.O. Box 757
Frankfort, KY 40602-0757
(502) 564-4754; (502) 564-2929 (TTY)
E-mail: Denise.Placido@mail.state.ky.us
Web: http://kyblind.state.ky.us

Cerebral Palsy/Physical Disabilities
Kerry Gillihan, President/CEO
Easter Seals Kentucky
2050 Versailles Road
Lexington, KY 40504
(859) 254-5701; (800) 888-5377
Web: www.cardinalhill.org

Epilepsy
Marge Frommeyer, Executive Director
Epilepsy Council of Greater Cincinnati, Inc.
3 Centennial Plaza
895 Central Avenue, Suite 550
Cincinnati, OH 45202
(513) 721-2905; (877) 804-2241
E-mail: ecgc@fuse.net
Web: www.ecgc.net

Debbie McGrath, Executive Director
Epilepsy Foundation of Kentuckiana
501 E. Broadway, Suite 110
Louisville, KY 40202
(502) 584-8817; (866) 275-1078
E-mail: dmcgrath@efky.org
Web: www.efky.org

Mental Retardation/Developmental Disabilities
Betsy Dunnigan, Acting Director
Division of Mental Retardation
Department of Mental Health and Mental Retardation Services
100 Fair Oaks Lane, 4E-E
Frankfort, KY 40621-0001
(502) 564-7700
Web: http://mhmr.ky.gov/mr

Councils on Developmental Disabilities
Pat Seybold, Executive Director
Kentucky Developmental Disabilities Council
Department of Mental Health and Mental Retardation Services
100 Fair Oaks Lane, 4E-F
Frankfort, KY 40621-0001
(502) 564-7842
E-mail: pat.seybold@ky.gov
Web: www.kddc.org

University Centers for Excellence in Developmental Disabilities
Harold L. Kleinert, Executive Director
Human Development Institute
Interdisciplinary University Center
for Excellence
University of Kentucky
126 Mineral Industries Building
Lexington, KY 40506-0051
(859) 257-3045
E-mail: haroldk@ihdi.uky.edu

Patty Dempsey, Executive Director
The Arc of Kentucky
833 E. Main
Frankfort, KY 40601
(502) 875-5225; (800) 281-1272
E-mail: arcofky@aol.com
Web: http://arcofky.org/

Speech and Hearing
Patti DeYoung, Executive Director
Kentucky Speech-Language-Hearing Association
535 W. Second Street, Suite 103
Lexington, KY 40508
(859) 252-3776; (800) 837-2446
E-mail: KSHAoffice@aol.com
Web: www.kysha.org

General Disability Resources
Protection and Advocacy Agency
Maureen Fitzgerald, Director
Protection and Advocacy Division
100 Fair Oaks Lane, Third Floor
Frankfort, KY 40601
(502) 564-2967; (800) 372-2988 (V/TTY in KY)
E-mail: info@kypa.net
Web: www.kypa.net

Client Assistance Program
Gerry Gordon-Brown, Director
Client Assistance Program
209 St. Clair, 5th Floor
Frankfort, KY 40601

(502) 564-8035; (800) 633-6283 (in KY)
E-mail: gerry.gordon-brown@ky.gov

Parent Organizations
Parent Training and Information Center (PTI)
Paulette Logsdon, Director
Kentucky Special Parent Involvement Network (KY-SPIN)
10301-B Deering Road
Louisville, KY 40272
(502) 937-6894; (800) 525-7746
E-mail: spininc@kyspin.com
Web: www.kyspin.com

Parent-To-Parent
Susan Lawrence, Parent Outreach Coordinator
Parent Outreach: Parents Supporting Parents
1146 S. Third Street
Louisville, KY 40203
(502) 584-1239
E-mail: outreach@councilonmr.org
Web: www.councilonmr.org

Community Parent Resource Center
(Serving Jefferson County)
Robin Porter, Project Director
FIND of Louisville
1146 S. Third Street
Louisville, KY 40203
(502) 584-1239
E-mail: info@councilonmr.org
Web: www.councilonmr.org


Respite
Pathways, Inc. Ashland (606) 324-1141

LifeSkills, Inc. Bowling Green (270) 842-0161

Medshares of Southern Kentucky Bowling Green (270) 781-5498

Cumberland River Mental Health/Mental Retardation Board, Inc. Corbin (606) 528-7010

Supported Living of Norther Kentucky, Inc. Covington (606) 261-0909

Kentucky Impact - Communicare Inc. Elizabethtown (502) 769-1304

American Nursing Care, Inc. Florence (606) 283-1500

Ft. Knox Army Community Service Fort Knox (502) 624-6291

Bluegrass IMPACT Frankfort (502) 875-3772

Sunshine Center Frankfort (502) 875-3495

T.J. Samson Community Hospital Home Health Agency Glasgow (502) 651-4430

St. Anthony's Hospice Henderson (502) 826-2326

Arc of the Blue Grass Lexington (606) 233-1483 www.arcbluegrass.com 

Hospice of Bluegrass Lexington (606)276-5344

Lexington Child Abuse Council Lexington (859) 259-1974

Commission for Children with Special Health Care Needs Louisville (502) 595-4459

Hazelwood Center Louisville (502) 361-2301

Home of the Innocents Louisville (502) 561-6600 www.homeoftheinnocents.org 

Mental Health/Developmental Disabilities Louisville (502) 459-5292 www.sevencounties.org 

Comprehend, Inc. Maysville (606) 564-4016

Christian Appalachian Project Mt. Vernon (606) 256-5921

Home Health Agency New Castle (502) 845-2761

Jessamine County Hopsice Nicholasville (606)887-2696

Christian Appalachian Project Orlando (606) 256-5923

Audubon Area Community Services, Inc. Owensboro (270) 683-1527 www.audubon-area.com 

Wellington Parc Paducah (270) 534-0620 www.wellingtonparc.com  

WEDCO/Bourbon County Home Health Paris (606) 987-6242

MEPCO Home Health Agency Richmond (859) 623-3441

Nathaniel House, Inc. Richmond (859) 623-8768

Allen Monroe Home Health Agency Scottsville (502) 237-4423

Lifeline Homecare, Inc. Somerset (606) 678-4032

The Adanta Group Somerset (606) 679-4782

Health Department- Whitley County

Van Conversions
Superior Van Conversions
4734 Rockford Pl.
Louisville, KY 40216

For even more resources go to: http://www.bridges4kids.org/states/ky.htm 

Back (Kansas)
Next Louisiana)

State Resources table of contents 


 

Subscribe to the Hydranencephaly Mailing list

August 16, 2001- January 12, 2005

This website is funded in loving memory of Jason S. by his mother Kammy

The information on this site is provided by families, caregivers, and professionals who are or have been caring for a child with Hydranencephaly.

Please report any broken links or missing photos to angelbearmom@shaw.ca