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Illinois Resources

Information in this section has come from the following sites:
http://cshcnleaders.ichp.edu/TitleVDirectory/PDF-Files-May-2003/Illinois_2002.pdf
https://performance.hrsa.gov/mchb/mchreports/link/statelink_result.asp http://www.fns.usda.gov/wic/Contacts/statealpha.HTM
http://www.cms.hhs.gov/medicaid/state.asp?state=IL
http://www.nichcy.org/stateshe/il.htm
http://www.library.tmc.edu/childrenshospitals.html
http://www.respitelocator.org/istates.htm
http://eparent.com/resources/directories/directories_van.cfm

Title V, Children With Special Health Care Needs program
CHSCN contact
Charles N. Onufer, M.D.
Director
Division of Specialized Care for Children
2815 West Washington Street, Suite 300Box 19481
Springfield, IL,62794-9481
(217) 793-2340
(217) 793-0773 fax
Email: cnonufer@uic.edu
Internet site: www.uic.edu/hsc/dscc

For more information on this program and eligibility criteria go to:
http://cshcnleaders.ichp.edu/TitleVDirectory/PDF-Files-May-2003/Illinois_2002.pdf

UIC Division of Specialized Care for Children
http://www.uic.edu/hsc/dscc/
This site has more information on programs available for your children

Medicaid
Illinois Medicaid Office
Department of Public Aid of Illinois
201 South Grand Avenue, East
Springfield, IL 62763
Local: 1-217-782-2570
Toll-Free: In-State Calls Only 1-800-226-0768
Local TTY: 1-800-526-5812
Website: http://www.dpaillinois.com/
For more information:
http://www.cms.hhs.gov/medicaid/state.asp?state=IL

WIC
Penny Roth, Acting Director

Bureau of Family Nutrition
Office of Family Health 
Illinois Department of Human Services 
535 West Jefferson Street 
Springfield, IL  62702 
telephone:  (217) 782-2166 
toll-free in-state: 1-800-323-4769
fax:  (217) 785-5247 
email:  dhshp53@dhs.state.il.us  
website: http://www.dhs.state.il.us/chp/ofh/FN/WIC.asp

State CHIP Program
(health care for low-income uninsured children)
Illinois KidCare
Illinois Department of Public Aid
201 S. Grand Avenue East
Springfield, IL 62753-0002
(866) 468-7543; (877) 204-1012 (TTY)
Web: www.kidcareillinois.com/

Education
State Department of Education: Special Education
Christopher Koch, Ed.D., Director
Department of Special Education
Illinois State Board of Education
100 N. First Street, N-243
Springfield, IL 62777-0001
(217) 782-4870
E-mail: chris.koch@isbe.net
Web: www.isbe.net/spec-ed/

Barb Sims, Principal Education Consultant
Illinois State Board of Education
Division of Special Education Services
100 N. First Street
Springfield, IL 62777-0001
(217) 782-5589
E-mail: bsims@isbe.net
Web: www.isbe.net/spec-ed

Programs for Infants and Toddlers with Disabilities: Ages Birth through 2
Janet D. Gully, Bureau Chief
Bureau of Early Intervention
Department of Human Services
222 S. College, 2nd Floor
Springfield, IL 62704
(217) 782-1981; (800) 323-4769 (in IL only)
E-mail: DHSVR50@dhs.state.il.us
Web: www.state.il.us/agency/dhs/eisnp.html

Programs for Children with Disabilities: Ages 3 through 5

Kay Henderson, Division Administrator
Division of Early Childhood Education
100 N. First Street, C-428
Springfield, IL 62777-0001
(217) 524-4835
E-mail: hhenders@isbe.net
Web: www.isbe.net

Paula Stadeker, Principal Education Consultant
Illinois State Board of Education
Division of Special Education Services
100 N. First Street
Springfield, IL 62777-0001
(217) 782-5589
E-mail:
pstadeke@isbe.net
Web:
www.isbe.net/spec-ed

For a listing of resource centers that provide legal or advocacy services at no or low cost, visit: www.isbe.net/spec-ed/parent%20advocates.htm
For due process information:
Beth Hanselman, Supervisor
Illinois State Board of Education
Division of Special Education Services
100 N. First Street
Springfield, IL 62777-0001
(217) 782-5589
Web:
www.isbe.net/spec-ed

1st Illinois Special Ed News
Curt Sahakian, Esq, Editor
4843 Howard Street
Skokie, IL 60077
(847) 676-2774
E-Mail:
1stNewsQuestions@IllinoisSpecialEd.com
Web:
http://www.IllinoisSpecialEd.com/1stIllinoisSpecialEdNews.htm
Free Electronic Newsletter with Notices of Local Special Education Workshops and Resources for Illinois Parents. Don't have time to wait? Email us and we'll answer your questions.

Illinois Early Childhood Intervention Clearinghouse
830 South Spring Street
Springfield, IL 62704
(800) 852-4302 (In Illinois); (217) 522-4655; Fax: (217) 522-4670
Email:
clearinghouse@eosinc.com
Web:
www.eiclearinghouse.org
Statewide learning library. Library and information services regarding health, educational, disability and developmental concerns of infants and young children and their families. Free quarterly newsletter, Early Intervention for Illinois parents. Interactive web site. For more information contact Project Director, Chet Brandt

Project CHOICES
(CHOICES) - Children Have Opportunities in Inclusive Environments and Schools
6S 331 Cornwall Road
Naperville,IL 60540
630-778-4508
Web:
www.projectchoices.org
promotes educational inclusion

Hospitals/Rehabilitation/Therapy Resources
Children’s Hospital of Illinois
530 N.E. Glen Oak Avenue
Peoria, Illinois 61637
Local Phone: (309) 655-7171
Fax Number: (309) 655-2347
http://www.childrenshospitalofil.org/

Children's Memorial Hospital  

2300 Children's Plaza 

Chicago, Illinois 60614-3394 

Phone: 773.880.4000
Website: http://www.childrensmemorial.org/default.asp

University of Chicago Comer Children's Hospital
5721 S. Maryland Avenue
Chicago, IL 60637
1-888-UCH-0200
http://www.uchicagokidshospital.org/ 

Ronald McDonald Children’s Hospital of Loyola
Phone: (877) 216-KIDS
Website: http://www.lumc.edu/RMCH/index.htm
(I couldn’t find a street address for this hospital)

Chicago Shriners Hospital
2211 N. Oak Park Ave.
Chicago, IL 60707
Telephone 773-622-5400
Fax 773-385-5453
Website: http://www.shrinershq.org/shc/chicago/ 

Blazing Prairie Stars
contact person: Christina Foster
47W635 Beith
Maple Park, IL 60151
E-mail: BlazingPS@msn.com
Horse-assisted therapy: hippotherapy (PT, OT, speech); therapeutic riding; experiential learning groups for children

Larry Bowman
Children's Therapy & Rehab Specialists
1225 S. Rand Road
Lake Zurich, IL 60047
(847) 550-8049 tel; (847) 550-6054 fax
E-mail: LarryB@childtherapyrehab.com
Web: www.childtherapyrehab.com

Community Therapy Services
Contact person: Cheryl Denz
2700 Keslinger, Suite B
Geneva, IL 60134
E-mail: info@commtx.com
Web: www.commtx.com
Provider of pediatric speech, occupational, physical, and music therapies. Hanen programs, Fast ForWord, free developmental screenings, social skills groups, preschool groups.

Rainbow Center, Inc.
Connie Guthary
2275 Church Road
Aurora, IL 60504
(630) 898-2200
E-mail:
info@rainbow-center.net
Web:
www.rainbow-center.net
Physical and occupational therapy, speech-language pathology, music therapy, and developmental therapy. Aquatic physical therapy, Handwriting Without Tears, FastForWord, Therapeutic Listening. Early Intervention and DSCC provider.

Specific Disabilitiy Resources
Blind/ Visually Impaired
Bettye Odem-Davis, Bureau Chief
Bureau of the Blind
Office of Rehabilitation Services
Department of Human Services
100 W. Randolph Street, Suite 8-100
Chicago, IL 60601
(312) 814-3323
Web: www.dhs.state.il.us/ors/bbs/

Jay Stiteley, Director
American Foundation for the Blind-Midwest
401 N. Michigan Avenue, Suite 350
Chicago, IL 60611
(312) 396-4420
E-mail: chicago@afb.net
Web: www.afb.org

Cerebral Palsy/Physical Disabilities
Don Moss, Executive Director
United Cerebral Palsy of Illinois
310 E. Adams
Springfield, IL 62701
(217) 528-9681
E-mail: ucpil@sbcglobal.net
Web: www.ucpillinois.com

Easter Seal DuPage
830 S. Addison
Villa Park, IL 60181
(630) 620-4433; Fax: (630) 620-1148; TTY: (630) 620-4436
E-mail: kevan@dupaeeasterseals

Epilepsy

Philip M. Gattone, President/CEO
Epilepsy Foundation of Greater Chicago
17 N. State, Suite 1300
Chicago, IL 60602
(312) 939-8622; (800) 273-6027
(312) 628-6027 (TTY)
E-mail: info@epilepsychicago.org
Web: www.epilepsychicago.org

Epilepsy Resource Center
(serving central Illinois)
1315 W. Lawrence Avenue
Springfield, IL 62704
(217) 726-1839 (V/TTY); (800) 800-6401
E-mail: epilepsy@spfldsparc.org

Mental Retardation/Developmental Disabilities
State Mental Retardation Program
Jeri Johnson, Director
Division of Developmental Disabilities
Department of Human Services
100 S. Grand Avenue, East, 2nd Floor
Springfield, IL 62762
(217) 524-7065
E-mail: dhs9255@dhs.state.il.us
Web: www.state.il.us/agency/dhs

Councils on Developmental Disabilities

Sheila T. Romano, Executive Director
Illinois Council on Developmental Disabilities
830 S. Spring Street
Springfield, IL 62704
(217) 782-9696 (V/TTY)
Web: www.state.il.us/agency/icdd/

University Centers for Excellence in Developmental Disabilities
Tamar Heller, Director
Institute on Disability and Human Development
Department of Disability and Human Development
University of Illinois at Chicago
1640 W. Roosevelt Road
Chicago, IL 60608
(312) 413-1647 (V); (312) 413-0453 (TTY)
Web: www.ahs.uic.edu/dhd

Tony Paulauski, Executive Director
The Arc of Illinois
18207-A Dixie Highway
Homewood, IL 60430
(708) 206-1930
E-mail: tony@thearcofil.org
Web: www.thearcofil.org

Speech And Hearing
Cynthia Keillor, Executive Director
Illinois Speech-Language-Hearing Association
230 E. Ohio Street, Suite 400
Chicago, IL 60611-3265
(312) 644-0828, ext. 2210
E-mail: ckeillor@bostrom.com
Web: www.ishail.org

Jodi Fleck, Principal Education Consultant
Illinois State Department of Education
Division of Special Education Services
100 N. First Street
Springfield, IL 62777-0001
(217) 781-5589
E-mail: jfleck@isbe.net
Web: www.isbe.net/spec-ed

General Disability Resources
Protection and Advocacy Agency
Zena Naiditch, CEO/President
Equip for Equality, Inc.
20 N. Michigan, Suite 300
Chicago, IL 60602
(312) 341-0022; (800) 537-2632 (V)
(800) 610-2779 (TTY)
E-mail: contactus@equipforequality.org
Web: www.equipforequality.org

Client Assistance Program

Cathy Meadows, Manager
Illinois Client Assistance Program
100 N. First Street, 1st Floor West
Springfield, IL 62702-5197
(217) 782-5374 (V/TTY); (800) 641-3929 (in IL)
E-mail: dhscap@dhs.state.il.us
Web: www.dhs.state.il.us/ors/cap

Kathy O'Brien, Resource Director
Pathways Awareness Foundation
150 N. Michigan Avenue, Suite 2100
Chicago, IL 60601
(800) 955-2445 (800) 326-8154 (TTY)
E-mail: friends@pathwaysawareness.org
Web: www.pathwaysawareness.org

Jo Holzer, Executive Director
Council for Disability Rights
205 W. Randolph, Suite 1645
Chicago, IL 60606-1892
(312) 444-9484; (312) 444-1967 (TTY)
E-mail: cdrights@interaccess.com
Web: www.disabilityrights.org

State Advisory Council on the Education of Children with Disabilities (ISAC)
Christopher Koch, State Director of Special Education
Department of Special Education
Illinois State Board of Education
100 N. First Street, N-243
Springfield, IL 62777-0001
(217) 782-4870
E-mail: chris.koch@isbe.net
Web: www.isbe.net/spec-ed/isac.htm

Family Benefit Solutions, Inc.
Sherri Schneider
1020 Milwaukee Avenue #101
Deerfield, IL 60015
(847) 279-8506; Fax: (847) 279-8507
Web: www.familybenefitsolutions.com
We help families investigate, obtain, and maintain all available benefit assistance programs including: Medicaid, KidCare, SSI and SSDI.

Fox Valley M.U.M.S. (Moms United for Moral Support)
Debbie Nardone or Candice Hadley
E-mail: gr8kidss@att.net or candicehadley@earthlink.net
Web: http://groups.yahoo.com/group/foxvalleymums/
MUMS is a Parent-to-Parent organization for parents or care providers of a child with any disability, disorder, chromosomal abnormality or health condition.

IL-TASH
406 W. Wood
Bloomington, IL 61701
(630) 584-0970
Web: http://www.illinois-tash.org
information & advocacy

Northern Suburban Special Recreation Association (NSSRA)
Dawn Schaefer
3105 MacArthur Blvd.
Northbrook, IL 60062
Voice/TDD: (847) 509-9400; Fax: (847) 509-1177
Email: info@nssra.org
Web: www.nssra.org
As a partnership of twelve park districts and municipalities, NSSRA provides recreation programs for adults and children with disabilities in the northern suburbs of Chicago.

The National Center on Physical Activity and Disability
James Rimmer, PhD
1640 West Roosevelt Road, Suite 711
Chicago, IL 60608-6904
Toll-Free: (800) 900-8086 to speak with an information specialist
Fax: (312) 355-4058
E-mail: ncpad@uic.edu
Web: www.ncpad.org
A national clearinghouse for information on physical activity for persons with disAbilities. Search our databases to access information on national accessible programs and other resources.

National Lekotek Center
2100 Ridge Avenue
Evanston, IL 60201
Lekotek Toy Resource Helpline: (800) 366-PLAY TTY: (800) 573-4446
(847) 328-0001; Fax: (847) 328-5514
E-Mail: lekotek@lekotek.org
Web: http://www.lekotek.org
Lekotek is a toy-lending library for children with disablities and their families

Parent Organizations
Parent Training and Information Center (PTI)
Charlotte Des Jardins, Director
Family Resource Center on Disabilities
20 E. Jackson Boulevard, Room 300
Chicago, IL 60604
(312) 939-3513; (312) 939-3519 (TTY)
(800) 952-4199 (In IL)
E-mail: frcdptiil@ameritech.net
Web: www.frcd.org


Donald Moore, Executive Director
Designs for Change
29 E. Madison, Suite 950
Chicago, IL 60602-4404
(312) 236-7252; (312) 236-7944 (TTY)
(800) 851-8728
E-mail: info@designsforchange.org
Web: www.designsforchange.org

Debbie Einhorn, Program Director
Family Matters
2502 S. Veterans Drive
Effingham, IL 62401
(217) 347-0880; (217) 347-5428 (V/TTY)
(866) 436-7842
E-mail: info@fmptic.org
Web: www.fmptic.org
This parent center serves all of Illinois outside of the 8 county Chicago area. Workshops and trainings are available throughout the state.

Partners in Policymaking

Ginny Cooke
Phoenix Perth Institute
P.O. Box 5429
Evanston, Illinois 60401-5429
(847) 425-1967
E-mail: ginnycooke@aol.com

Parent-To-Parent
Charlotte Des Jardins, Executive Director
Family Resource Center on Disabilities
20 E. Jackson Boulevard, Suite 300
Chicago, IL 60604
(312) 939-3513; (312) 939-3519 (TTY)
(800) 952-4199 (In IL)
E-mail: frcdptiil@ameritech.net
Web: www.frcd.org

Charlotte Cronin, Executive Director
Family Support Network of Illinois
5739 W. Martindale Lane
Peoria, IL 61615-9669
(309) 693-8981
E-mail: fsn@familysupportnetwork.org
Web: www.familysupportnetwork.org/

Lifeline Family Resource Center
525 N. Main St.
Elburn
, Il. 60119
(phone) 888-365-1584
(fax) 630-365-1715
E-mail: Bberndtprs@aol.com
A place to call when you are overwhelmed or just don't know who to call first. Our staff provides linkage to resources, provides wraparound facilitation training to parents, provides training to build parent/professional partnerships.

Respite
Sertoma Centre, Inc. Alsip (708) 371-9700

Association for Individual Development Aurora (708) 844-5040 x464

Harmony Home Care, Inc. Barrington (847) 382-6200

St. Clair Associated Vocational Enterprises Belleville (618) 234-1992

Alden Village Bloomingdale (708) 529-3350

Easter Seals -- UCP Respitality Program Bloomington (309) 663-8275

MARC Center Bloomington (309) 827-6722

Metropolitan Family Services Blue Island (708) 974-5815 www.Metrofamily.org   

Clinton County Rehabilitation Center Breese (618) 526-8800

Community Support Services Brookfield (708) 354-4547

Delta Center, Inc Cairo (618) 734-2665

Macoupin County Mental Health Center Carlinville (217) 854-2281

Little Friends, Inc. Carol Stream (708) 690-7292

Developmental Services Center Champaign (217) 356-9176

Lutheran Social Services of Illinois Champaign (217) 398-3011

CCAR Industries Charleston (217) 348-0127

Abraham Lincoln Centre Chicago (312) 225-5545

Chicago Association for Retarded Citizens Chicago (773) 241-5700

Children's Place Association Chicago (773) 395-9193

Crisis Nursery of Chicago Chicago (312) 633-4984

Department of Mental Health and Development Disabilities Chicago (312) 814-2728

El Valor Family Service Chicago (312) 997-2021 www.lekotek.org

Habilitative Systems Chicago (312) 261-2252

Lester and Rosalie Anixter Center Chicago (773) 465-3195 www.anixter.org 

 Lutheran Social Services of Illinois Chicago (773) 282-7347

 Miseracordia Home South Chicago (312) 254-9595

North Center for Handicapped Children Chicago (312) 777-4111

South Chicago Parents and Friends of Retarded Children Chicago (773) 734-2222

The Children's Place Association Chicago (312) 826-1230

Seguin Services, Inc. Cicero (708) 863-3803

DeWitt County Human Resources Center Clinton (217) 935-9496

Macon Resources Inc. Respite Service Decatur (217) 875-1910

Family Services Agency of DeKalb County, Inc. DeKalb (815) 758-8616

Augustana Respite Care Coordination Program Des Plaines (847) 329-0960

Kreider Services Inc. Dixon (815) 288-6691

New Hope School and Work Activity Center Dolton (708) 841-4034 www.newhopecenterinc.com 

Ray Graham Association for People with Disabilities Downers Grove (630) 620-2222

ARC Community Support Services Effingham (217) 347-0880 www.arc-css.org 

Jayne Shover Easter Seal Elgin (847) 742-3264 www.jayneshover.org

 Larkin Center for Children and Adolescents Elgin (708) 695-5656

Little Angels Nursing Home Elgin (847) 741-1609

Metropolitan Family Services Elmhurst (630) 653-2397 www.metrofamily.org 

Respite Care Evanston (708) 733-1400

Good Shepherd Center Flossmoor (708) 957-5700

Malcolm Eaton Enterprise Freeport (815) 235-7181

JoDaviess Workshop, Inc. Galena (815) 777-2211

Glenkirk Respite Services Glenview (847) 998-8380 www.glenkirk.org

At-Home Care Granite (618) 798-3900

Pathway Services Unlimited Jacksonville (217) 479-2300

Easter Seals Rehabilitation Center Joliet (815) 741-5531

Trinity Services, Inc. Joliet (708) 479-0028

United Cerebral Palsy Joliet (815) 744-3500

Will County Health Department Joliet (815) 727-5912

United Developmental Services Kankakee (815) 939-4070

Abilities Plus Kewanee (309) 852-4626

MHCCI/Logan-Mason Rehabilitation Center Lincoln (217) 735-5223

Walter Lawson Children's Home Loves Park (815) 633-6636

Bridgeway, Inc. Macomb (800) 475-4226

Karriem's Developmental Services Markham (708) 335-1446

Pioneer Center McHenry (815) 385-9800 x 238

Trade Industries McLeansboro (618) 643-4321

ARC/Rock Island County Molline (309) 764-6330

Warren Achievement Center Monmouth (309) 734-7644

Fox Valley Older Adult Services Morris (815) 941-9216

Jefferson County Comprehensive Services Mt. Vernon (618) 242-7300

CoACH House Naperville (630) 271-9155 www.coachcarecenter.org 

Little Friends Naperville (708) 355-0061

Respite House, Inc. Naperville (630) 960-2467

Opportunity Center of Southeast Illinois Olney (618) 395-2418

Countryside Association for the Handicapped Palatine (847) 438-8944

Right at Home Palatine (847) 925-9532 www.rightathome.net

Human Resources Center Paris (217) 465-4118

Tazewell County Resource Centers, Inc. Pekin (309) 347-5121

Crittenton Care and Counseling Center Peoria (309) 674-4125

Interim Health Care Peoria (309) 693-7665

PARC Respite Care Center Peoria (309) 685-3233

United Cerebral Palsy of Central Illinois Peoria (309) 672-6325

Menard County Home Health Petersburg (217) 632-7864

Futures Unlimited, Inc. Pontiac (815) 842-1122

Gateway Center Princeton (815) 875-4548

Lawrence/Crawford Association for Exceptional Citizens Robinson (618) 546-5625

Milestone Respite Rockford (815) 986-5222

Rockdale Children's Home Rockford (815) 654-3050

Shelby County Community Services, Inc. Shelbyville (217) 774-5587

Jewish Children's Bureau Skokie (847) 568-5100 www.jcbchicago.org 

 Orchard Village In-Home Respite Care Skokie (847) 967-1800 www.orchardvillage.org 

 SHORE Community Services, Inc. Skokie (847) 982-2030 www.shoreinc.org 

 New Visions Home Health Care, Inc. South Holland (708) 339-8100

 Mini O'Beirne Crisis Nursery Springfield (217) 525-6800 www.miniobeirne.org

 Project Cornerstone Springfield (217) 524-7724

 Springfield Association for Retarded Citizens, Inc. Springfield (217) 793-2100

 The Hope School Springfield (217) 585-5437 www.thehopeschool.org 

 Moultrie County Beacon Sullivan (217) 728-7396

 Christian County Mental Health Association & Developmental Center Taylorville (217) 824-9675

 Crisis Nursery, Urbana Illinois Urbana (217) 337-2730

 Fay-Co Enterprises, Inc. Vandalia (618) 283-1875

 The ARC of Iroquois County Watseka (815) 432-6191

 Metropolitan Family Services West Chicago (630) 653-2397 www.metrofamily.org 

 Metropolitan Family Services Wheaton (630) 784-4875 www.metrofamily.org 

 William B. Dell Achievement and Resource Center Wood River (618) 251-2175

 Heartstrings Adoption Support Program Woodstock (815) 338-7360

Van Conversions
MidWest Mobility & Design, Inc.
437 W. Wise Road
.Schaumburg, IL 60193

For even more resources go to:  http://www.bridges4kids.org/states/il.htm

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August 16, 2001- January 12, 2005

This website is funded in loving memory of Jason S. by his mother Kammy

The information on this site is provided by families, caregivers, and professionals who are or have been caring for a child with Hydranencephaly.

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