Site Map

Home

For new families

Hydranencephaly
Information 


Our Rays of Sunshine

Resources in caring for a Child with Hydranencephaly

Physical Care of a Child with Hydranencephaly

Health Conditions

Prenatal Diagnosis

For Grieving Families

Difficult Times Pt. 1: Taking Care of You

Difficult Times: Pt 2: What If?

About us

News

Meet other families:




 

Contact a Family

Hydranencephaly Message Board

Book: Caring for Your Child With Hydranencephaly

Hydranencephaly data base

 

 

 

Arizona State Resources

The following resources were used for information in this section:
http://www.nichcy.org/stateshe/az.htm
http://www.yellowpagesforkids.com/help/az.htm
http://cshcnleaders.ichp.edu/TitleVDirectory/PDF-Files-May-2003/Arizona_2003.pdf https://performance.hrsa.gov/mchb/mchreports/link/statelink_result.asp http://www.fns.usda.gov/wic/Contacts/statealpha.HTM
http://www.cms.hhs.gov/medicaid/state.asp?state=AZ http://www.library.tmc.edu/childrenshospitals.html
http://www.respitelocator.org/
http://eparent.com/resources/directories/directories_van.cfm

 Parent Resource
Jeanene Headlee
9211 N. Condor Place
Tucson, Arizona  85742
520 575-9229

Title V, Children With Special Health Care Needs Programs 
CSHCN Contact
Cathryn Echeverria
Chief, OCSHCN
2927 N. 35th Avenue, Suite 200
Phoenix, AZ,85017
(602) 542-1860
(602) 542-2589 fax
Email: cecheve@hs.state.az.us or sburke@hs.state.az.us
Web: www.hs.state.az.us/phs/ocshcn/index.htm

For specific information and eligibility criteria please go to:
http://cshcnleaders.ichp.edu/TitleVDirectory/PDF-Files-May-2003/Arizona_2003.pdf

Programs for Children with Special Health Care Needs
Office for Children with Special Health Care Needs
Department of Health
1740 W. Adams Room 200
Phoenix, AZ 85007
(602) 542-1860

Medicaid
Arizona Medicaid Office
Health Care Cost Containment of Arizona
801 E. Jefferson
Phoenix, AZ 85034
Local: 1-602-417-7000 (Out of state callers call: 1-800-523-0231)
Toll-Free: 1-800-962-6690
Spanish Phone: 1-602-417-7700
Local TTY: 1-602-417-7019
Toll-Free TTY: 1-800-826-5140
Fax: 1-602-252-2136

For more information:
http://www.cms.hhs.gov/medicaid/state.asp?state=AZ

 WIC
Margaret Tate, MS, RD, WIC Program Director 
Office of Nutrition & Chronic Disease Prevention
AZ Department of Health Services 
150 North 18th Avenue, Suite 310
Phoenix
, AZ  85007
telephone:  (602) 542-1886 
toll-free in-state:  1-800-252-5WIC or 1-800-252-5942
fax:  (602) 542-1890 or 1804 
email:  mtate@hs.state.az.us  
website: http://www.hs.state.az.us/phs/oncdps/wic/index.htm

State CHIP Program
(health care for low-income uninsured children)
KidsCare
920 E. Madison
MD 500
Phoenix, Arizona 85034
(602) 417-5437; (877) 764-5437
Web: www.kidscare.state.az.us/English/Default.asp

Education Resources
State Department of Education: Special Education
Joanne C. Phillips, Deputy Associate Superintendent
Exceptional Student Services
Department of Education
1535 W. Jefferson, Bin 24
Phoenix, AZ 85007
(602) 542-4013
E-mail: jphilli@ade.az.gov
Web: www.ade.az.gov

Programs for Infants and Toddlers with Disabilities: Ages Birth through 2
Molly Dries, Executive Director
Arizona Early Intervention Program (AzEIP)
Department of Economic Security, 801A-6
3839 N. 3rd Street, Suite 304
Phoenix, AZ 85012
(602) 532-9960; (888) 439-5609 (in AZ)
E-mail: mdries@azdes.gov
Web: www.azdes.gov/azeip

Programs for Children with Disabilities: Ages 3 through 5
Cheryl Blackwell, Preschool Coordinator
Exceptional Student Services
Department of Education
2005 N. Central, Bin 15
Phoenix, AZ 85004
(602) 542-2727
E-mail: cblackw@ade.az.gov
Web: www.ade.az.gov

Arizona Early Intervention Program (AzEIP)
Department of Economic Security, 801A-6
3839 N. 3rd Street, Suite 304
Phoenix, AZ 85012
(602) 532-9960, ext. 113
E-mail: allazeip@mail.de.state.az.us

Bart Stevens Special Needs Planning, LLC
Bart Stevens, ChLAP
12406 N. 32nd Street, Ste. 102
Phoenix, AZ 85032
(602) 404-4239; (888) 447-2525; Fax: (602) 996-0944
E-mail: info@BSSNP.com
Web: www.BSSNP.com
Our purpose is to educate and provide future planning options, products, and services for families, friends, organizations, and professionals who have, or know, a person with a developmental disability.

Exceptional Student Services, Department of Education
1535 West Jefferson
Phoenix, AZ 85007
(602) 542-4013
E-mail: lbusenb@mail1.ade.state.az.us
E-mail: smishlo@mail1.ade.state.az.us
E-mail: jgasawa@mail1.ade.state.az.us
Web: www.ade.state.az.us/

Insightful Choices an Educational Consulting Group
13358 N. 101st Place
Scottsdale, AZ 85260
(480) 326-9162; Fax: (888) 662- 1311
E-mail: madeline.modrak@insightfulchoices.org
Web: www.insightfulchoices.org
Working with Families to Adovcate for Children with Educational Concerns. Assessment, Recommendations and Follow-up

Hospitals/Rehabilitation Facilities
Arizona Children’s Health Care Organization
1402 East South Mountain Avenue
Phoenix, AZ 85042
Phone: 602.243.4231
Fax: 602.243.1217
http://www.haciendainc.org/achcc.html

Hacienda Inc. (provides care and resources for children with disabilities)
http://www.haciendainc.org/

Los Ninos Hospital
2303 East Thomas Road
Phoenix, Arizona 85016 
Phone: 602.954.7311
Fax: 602.954.7355
http://www.haciendainc.org/losninoshospital.html

Phoenix Children's Hospital
1919 E. Thomas Road
Phoenix, AZ 85016
(602) 546-1000
http://www.phxchildrens.com/

Arizona Child Study Center
Children's Health Center of St. Joseph's Hospital
Maria Hernandez
Suite 240; 124 W. Thomas Road
Phoenix, AZ 85013
(602) 406-3543; Fax: (602) 406-6135
E-mail: MHernan@chw.edu
Family Centered approach to assessment and treatment for children with ADHD, autism spectrum disorders, neurodevelopmental disorders, adoption and foster care, and young children with FTT.

Arizona Child Study Center
Programs in Developmental and Behavioral Pediatrics
Children's Health Center of St. Joseph's Hospital and Medical Center
124 W. Thomas Road, Suite 240
Phoenix, AZ 85013
(602) 406-3543; Fax: (602) 406-6135
Daniel B. Kessler, MD; Director
Robin K. Blitz; MD Ronald Lindsay MD
Lynn K. Aiken, RN, MS, PNP
Theresa Rimer, RN, MS, CPNP
Dorothy Rzewnicki, RN, MS, CPNP
Evaluations and ongoing treatment as well as assistance with advocacy for children and adolescents with problems of learning and behavior including but not limited to Attention Deficit Hyperactivity Disorder, including co-existing conditions of learning, behavior, anxiety, mood; children with pervasive developmental disorders including childhood autism, Aspergers Syndrome, Atypical Autism, Autistic Spectrum Disorders; children who are adopted nationally or internationally; children with neurodevelopmental disorders such as Fragile-X and Fetal Alcohol Syndrome and related disorders; and young children with feeding disorders and poor growth.

Specific Disability Resources

Blind/Visual Impairments
Chris Tompkins, Executive Director
Foundation for Blind Children
1235 E. Harmont Drive
Phoenix, AZ 85020
(602) 331-1470
E-mail:
ctompkins@the-fbc.org
Web:
www.the-fbc.org

Programs for Children and Youth who are Blind or Visually Impaired, Deaf or Hard of Hearing, or Deaf-Blind
Doris Senor Woltman, Superintendent
Arizona State Schools for the Deaf and the Blind
P.O. Box 88510
Tucson, AZ 85754
(520) 770-3718
E-mail:
dwoltman@asdb.state.az.us
Web:
www.asdb.state.az.us

Gil Johnson, Director
American Foundation for the Blind-West
111 Pine Street, Suite 725
San Francisco, CA 94111
(415) 392-4845
E-mail:
sanfran@afb.net
Web:
www.afb.org

Cerebral Palsy/Physical Disabilities
Guy Collison, President
United Cerebral Palsy of Central Arizona
1802 W. Parkside Lane
Phoenix, AZ 85027
(602) 943-5472
E-mail:
info@ucpofaz.org
Web:
www.ucpofaz.org

United Cerebral Palsy of Southern Arizona
Cindy Echols PhD, Director
3941 E. 29 Street, Suite 603
Tucson, AZ 85711
(520) 795-3108, (520) 795-3196
E-mail: staff@ucpsa.org
Web: www.ucpsa.org
UCPSA serves persons with disabilities and their families in a variety of programs which include support services (attendant care, etc.) and special projects (assistive technology and grandparent issues)

Easter Seals Arizona
903 North Second Street
Phoenix, AZ 85004
(602) 252-6061; (800) 626-6061
(602) 254-3026 (TTY)
E-mail: bmpseals@inficad.com

Michael Fitzgerald, Executive Director
Brian Patchett, Vice President of Programs
Easter Seals Arizona
2075 S. Cottonwood Drive
Tempe, AZ 85282
(480) 222-4100; (800) 626-6061
E-mail:
frontdesk@azseals.org
Web:
www.eastersealsarizona.org

Epilepsy
Mary Macleish, Executive Director
Epilepsy Foundation of Arizona
P.O. Box 25084
Phoenix, AZ 85002-5084
(602) 406-3581; (888) 768-2690
E-mail:
mmaclei@chw.edu
Web:
www.epilepsyfoundation.org/arizona/

Mental Retardation/Developmental Disabilities
Richard Young, Executive Director
The Arc of Arizona, Inc.
5610 S. Central Avenue
Phoenix, AZ 85040
(602) 243-1787; (800) 252-9054
E-mail:
arcofarizona@aol.com
Web:
www.arcarizona.org

State Developmental Disabilities Program
Ric Zaharia, Assistant Director
Department of Economic Security
Division of Developmental Disabilities
P.O. Box 6123, Site Code (791A)
Phoenix, AZ 85005
(602) 542-6853
Web:
www.de.state.az.us/ddd

State Developmental Disabilities Planning Council
Jami Snyder, Executive Director
Governor’s Council on Developmental Disabilities
1717 W. Jefferson Street
Site Code (074Z)
Phoenix, AZ 85007
(602) 542-4049
E-mail:
jsnyder@azdes.gov
Web: www.de.state.az.us/gcdd

University Centers for Excellence in Developmental Disabilities
Richard Carroll, Executive Director
Institute for Human Development
Northern Arizona University
P.O. Box 5630
Flagstaff, AZ 86011
(928) 523-4791
E-mail:
ihd.uap@nau.edu
Web:
www.nau.edu/~ihd

Speech and Hearing
Tori Micoliczyk, Assistant to ArSHA
Arizona Speech-Language-Hearing Association
P.O. Box 30988
Phoenix, AZ 85046
(602) 354-8062; (800) 705-7510
Email:
office@arsha.org

Arizona Speech-Language-Hearing Association
7622 N. 48th Drive
Glendale, AZ 85301
(623) 939-6103; (800) 705-7510
E-mail: arshoffice@yahoo.com
Web: www.healthcaresource.com/arsha

Gail Harris, PhD, CCC- SP
Gail Harris
4637 North Camino Cardenal
Tucson AZ 85718
or
122 West Juniper
Flagstaff, Az 86001
Phone: In Tucson (520) 577-0329 In Flagstaff (520) 444-6179 (cell)
Fax: (520) 577-3040
E-mail: gharris4637@hotmail.com
Web: www.fasarizona.com
Speech-language and early intervention and treatment. Parent support and advocacy training. Community training: fetal alcohol syndrome, disability issues

General Disability Resources

Protection and Advocacy Agency
Leslie Cohen, Executive Director
Arizona Center for Disability Law
100 N. Stone Avenue, Suite 305
Tucson, AZ 85701
(520) 327-9547 (V/TTY)
E-mail: lcohen@acdl.com
Web: www.acdl.com

Roberto Armijo, Executive Director
Community Information & Referral Services
1515 E. Osborn Road, The Annex
Phoenix, AZ 85014
(602) 263-8856; (800) 352-3792 (In AZ)
E-mail: firstcall@cirs.org
Web: www.cirs.org

Advocates Across America
1243 E Chicago Circle
Chandler, AZ 85225
E-mail: support@axa.org

Community Information and Referral Services
1515 E. Osborn
Phoenix, AZ 85014
(602) 263-8856; (800) 352-3792 (In AZ)
E-mail: cirs@cirs.org
Web: http://www.cirs.org/

Disabilities Helpline of Arizona
Community Information and Referral Services
1515 E. Osborn
Phoenix,AZ 85014
(602) 263-8845; (800) 352-3792 (In AZ)
(602) 263-8856 (In Maricopa)

Parent Organizations

Parent Training and Information Center (PTI)
Joyce Millard-Hoie, Executive Director
Raising Special Kids
2400 N. Central Avenue, Suite 200
Phoenix, AZ 85004-1313
(602) 242-4366; (800) 237-3007 (in AZ only)
E-mail: info@raisingspecialkids.org
Web: www.raisingspecialkids.org

Lynn Kallis, Executive Director
Pilot Parents of Southern Arizona
2600 N. Wyatt Drive
Tucson, AZ 85712
(520) 324-3150; (877) 365-7220
E-mail: lynn@pilotparents.org
Web: www.pilotparents.org

Partners in Policymaking
Lynn Kallis, Executive Director
Pilot Parents of Southern Arizona
2600 N. Wyatt Drive
Tucson, AZ 85712
(520) 324-3150; (877) 365-7220
E-mail: lynn@pilotparents.org
Web: www.pilotparents.org

ISPIN (Innovative Services Parent Information Network)
Patty Hlavac
2015 Yavapai Drive
Kingman, AZ 86401
(928) 753-5889 (message phone)
E-mail: phlavac@ctilink.net
Non-profit parent run support group helping to educate and provide support and resources for parents of children with disabilities.

RAISING Special Kids
2400 N. Central Avenue, Suite #200
Phoenix, AZ 85004-9802
(602) 242-4366
(800) 237-3007
Website: www.raisingspecialkids.org

Respite Programs

This information is from the National Respite Locator site
http://www.respitelocator.org/astates.htm

I have no other information on these resources, so have no idea if any are appropriate for out kids. But, they’re a place to start.

Northland Family Help Center Flagstaff (520) 527-1800

West Valley Child Crisis Center, Inc. Glendale (623) 848-8863 www.wvccc.org 

Gila
County ARC Globe (520) 425-6053 }

Child Crisis Center-- East Valley Inc. Mesa (480) 969-2308 www.childcrisis.org 

Aid to Adoption of Special Kids Phoenix (602) 254-2275 www.aask-az.org 

Comfort Keepers Phoenix (602) 971-4484

Community Information and Referral Phoenix (602) 263-8556 www.cirs.org


Crisis Nursery, Inc. Phoenix (602) 273-7364 www.crisisnurseryphx.com 

Family Voices -- SHARE Network Phoenix (602) 277-7504 www.members.aol.com/FamVoices/arizona.htm 

American Medical Plaza Tucson (520) 795-5200

Arizona State Dept. of Economic Security Tucson (520) 745-5588

 Casa De Los Niños Tucson (520) 624-5600  www.casadelosninos.org

 La Hacienda Tucson (520) 296-5551

 Open-Inn, Inc. Tucson (602) 670-9040

 Our Town Family Center Tucson (800) 537-8696

 Van Conversions
Handicap Vehicle Specialists, Inc.
3306 W. Washington #106
Phoenix, AZ 85034 
 
Vantage Mobility International
5202 S. 28th Place
Phoenix, AZ 85040 
Phone: 800-348-8267
Email: info@vantagemobility.com 
Web site: www.vantagemobility.com
 
 
For even more resources go to: http://www.bridges4kids.org/states/az.htm 
 
Back (Alaska)
Next (Arkansas)

Back to Resources table of contents page

 

Subscribe to the Hydranencephaly Mailing list

August 16, 2001- January 12, 2005

This website is funded in loving memory of Jason S. by his mother Kammy

The information on this site is provided by families, caregivers, and professionals who are or have been caring for a child with Hydranencephaly.

Please report any broken links or missing photos to angelbearmom@shaw.ca