Physical
Child's tone (how floppy or tight they are):
Tight (high tone): 48%,
Floppy (low tone): 7%,
both floppy and tight: 44%
Clonus (tremor in the leg not related to a
seizure)
Yes: 62%
No:38%
Hips:
Subluxed (partly out): 42%
Of those: 22.22%
were the left hip, 14% right hip, 64% had both subluxed
Dislocated: 29%
of those: 31% were the left hip, 18% right, 50% had both dislocated
Hip Surgery: 21%
Surgeries: 80% had soft tissue (adductor tendon release)
53% had hip reconstruction surgeries (osteotomies)
6% (1 person): had a femoral resection (head of femur removed)
of those who have had surgery: 46% had one hip surgery
26% had 2
26% had 3
Spine:
39% have scoliosis
19% have kyphosis (spine curved forward)
2 children (2%) have had surgery for scoliosis
19% of the children have had botox injections
If yes, where (what part of the body) and how many
times?
|
|
Answer |
|
11 |
so far 1x only
(bilateral gastrocs, right posterior tibialis, left & right elbow
flexors) |
|
13 |
hands, elbows, hamstrings |
|
16 |
Is
having them in a months time |
|
17 |
biceps and abductors |
|
20 |
Legs twice, arms |
|
23 |
knees, arms, legs, feet -5 times |
|
30 |
shoulders, elbows,
thumbs & fingers--3 or 4 times |
|
36 |
shoulders arms
hands and feet |
|
37 |
arms, wrists, hamstrings twice |
|
41 |
hands and elbows |
|
42 |
Adductors every 6
months |
|
43 |
behind his knees his hamstrings |
|
45 |
But they are planned in the future |
|
47 |
saliva glands various times (about 3) |
|
56 |
thumb spaces,
knees, elbows |
|
71 |
thighs once |
|
81 |
twice in groin |
|
86 |
wrists, legs |
Of those who had botox, they worked in 88% of the
children
|
|
Shows awareness of
surroundings by: |
Age started |
Changed ? |
how |
|
1 |
looking around, listening to what is going on |
about 5 years
|
Yes
|
noticed more and more |
|
2 |
no |
|
|
|
|
3 |
smiles when approached, gets startled, wants to be picked up, fusses if
left alone, turn towards sounds |
from birth |
Yes |
became calmer, likes to alone more, entertains herself better
|
|
4 |
laughs at stimuli |
1
year |
Yes |
more aware of surroundings |
|
5 |
smiles and laughs |
12
months |
Yes |
progressing beyond anything we were told he would ever do! |
|
6 |
looking, start or stop crying |
birth |
Yes |
become more prominent and consistent, responds to a larger variety of
things |
|
7 |
smiles, looks at you, turns head toward you, listens intently |
as
an infant |
Yes |
more aware as got older
|
|
8 |
No |
|
|
|
|
9 |
e.g. .he seems to be more relaxed whenever he comes "home" after being
out. He'll look around the room and start smiling (as if to say he's
happy to be home). |
n/a |
n/a |
n//a |
|
10 |
a.
attitude, facial expression, smiles
b.
facial expression/ movement |
a.. n/a
b.
3 months |
a. n/a
b.
Yes |
a. n/a
b.
more aware |
|
11 |
by
showing different emotions depending on where he is. |
|
No |
|
|
12 |
no |
|
|
|
|
13 |
looks to people talking to her, looks to TV or sounds, coos, vocalizes |
4
months |
Yes |
she has gotten more aware as seizures have come under control |
|
14 |
looks at person in room |
1 (?yr or mo) |
no |
|
|
15 |
no |
|
|
|
|
16 |
Eyes get big, smiles, makes sounds, turns to sounds |
1 (?yr or mo) |
Yes |
better as he has gotten older. Differs with health |
|
17 |
smiling . responding with his eyes |
9
months |
Yes |
more responsive |
|
18 |
no |
|
|
|
|
19 |
She has wonderful hearing and recognizes different people and places |
3mos.
|
Yes
|
She has gotten better and better at recognizing that certain sounds mean
things |
|
20 |
Listens, sometimes looks, has mood changes |
birth |
No
|
|
|
21 |
no |
|
|
|
|
22 |
smiles coos |
4months |
|
|
|
23 |
facial expression, smile, laugh |
1
year |
Yes
|
more aware, interactive all the time |
|
24 |
Eye movement and making sounds
|
15
months
|
No
|
|
|
25 |
Moves towards voice, or listens quietly |
Right away to mom and dad
|
|
|
|
26 |
turning toward noise, startles |
8m |
|
|
|
27 |
bright eyes, smile, moves head from side to side |
6
months |
Yes
|
more aware |
|
28 |
is
happiest at home - as soon as we get there. looks at and calms only for
familiar people |
3
months old |
No |
|
|
29 |
n/a |
|
|
|
|
30 |
seems comfortable & relaxed, looks around. But if he's unsure of where
he is, he pulls his arms up, tenses up, may look down so much so that
people think he's asleep (hoods his eyes) |
he's always done this
|
Yes
|
He's shown more awareness over the past year
|
|
31 |
No |
|
|
|
|
32 |
a.
n/a
b.
n/a |
a.
n/a
b.
n/a |
a.
n/a
b.
n/a |
a.
n/a
b.
n/a |
|
33 |
looks at things |
6
months |
No
|
|
|
34 |
|
from birth |
Yes
|
diminished
|
|
35 |
reacts to loud noise, sunlight, touch |
always |
No |
|
|
36 |
smiles, laughs, turns head, responses to social interactions |
6mths?
|
Yes
|
was very irritable till started Tegretol
|
|
37 |
-
blinks, smiles,
laughs, responses to stimuli
-
laughs, giggles,
turns head
|
a.
birth
b.most always
|
a.
No
b.
Yes
|
when over sedated by seizure meds |
|
38 |
n/a |
|
|
|
|
39 |
-
No
-
no
|
|
|
|
|
40 |
looks around, makes noises, waves arms or legs |
since birth showed some signs of awareness
|
|
|
|
41 |
when he is someplace strange, he keeps his eyes downcast. people always
think he's asleep when we have him in public
|
1
year
|
Yes
|
he
has grown more aware of different places and definitely different voices
|
|
42 |
No
|
|
|
|
|
43 |
a.
n/a
b.
he makes sounds and smiles
|
a.
n/a
b.
about 2/12
|
a.
n/a
b.
No
|
a.
n/a
|
|
44 |
listens and moves his head and he jabbers |
|
No
|
|
|
45 |
She can hear very well and knows voices. She will 'holler' at us |
birth
|
Yes
|
She is becoming more alert
|
|
46 |
Recognition of familiar by smiles |
4-6 weeks |
No |
|
|
47 |
laughs or cries, tilts head towards sounds |
very young |
Yes
|
when ill, he was less responsive |
|
48 |
no |
|
|
|
|
49 |
n/a |
|
Yes |
more awareness |
|
50 |
n/a |
|
|
|
|
51 |
n/a |
|
|
|
|
52 |
Smiles, kicks oohs and aahs interacts or cries |
birth
|
Yes |
improved especially likes swimming and can say three word sounds for ma
- mama gaa- for grandad - jaaa for jamie also "leaps" out of arms to
person she wants to go to |
|
53 |
(yes) n/a |
|
|
|
|
54 |
Very alert, knows her own home, mommy, nurse, etc. |
3
months |
Yes |
much more awareness of surroundings |
|
55 |
facial, smile, eyes searching although he's cortically blind |
3
months |
No |
|
|
56 |
Smiles, coos, happy, "talkative" |
12
months |
Yes |
She has become more familiar with her "home" surroundings |
|
57 |
eyes & smile or cry |
1
year |
No |
|
|
58 |
No
|
|
|
|
|
59 |
moving eyes and sometimes cooing |
1 |
Yes |
better then to worse |
|
60 |
a.
Recognize person by voices, enjoy listening to birds and try to locate
the birds
b.
Smile if one walking toward him or calling his name. |
a.
1 year
b.
4 yrs
|
a.
Yes
b.
Yes
|
a.
Sometime he just ignore the surrounding and show no reaction so it's
difficult to tell if he is aware or not
b.
more awareness
|
|
61 |
looking around, grinning |
very early on around 1 yr |
Yes
|
increased awareness |
|
62 |
calms down |
1
yr |
n/a |
|
|
63 |
n/a |
n/a |
n/a |
n/a |
|
64 |
facial expressions, agility |
~
6 weeks |
n/a |
n/a |
|
65 |
a.
n/a
b.
cries when certain people hold him, would only take a bottle from Mom at
first - now takes bottle from rest of family members/friends. Cries as
soon as placed into car seat or swing. Stops crying when picked up.
Watches other children intently.
|
a.
n/a
b.
Since we got him at 17 days old
|
a.
n/a
b.
Yes
|
a.
n/a
b.
Awareness improved after shunt placed at 2 mos.
|
|
66 |
looks around knows when we are at therapy or school , verbalizes |
2-3 yrs |
No |
|
|
67 |
tracks with eyes and fusses |
1mo. |
No |
|
|
68 |
she responds to her parents' voices, her brother's also |
recently |
|
|
|
69 |
n/a |
n/a |
n/a |
n/a |
|
70 |
a.
no
b.
No
|
|
|
|
|
71 |
laughing looking around |
not sure |
Yes |
grew he shows more awareness |
|
72 |
He
looks around a lot and looks at everything and notices his father and I
and he can follow objects |
cant remember |
No |
|
|
73 |
a.
turns head toward sounds and voices
b.
Smiles and tries to talk ( i.e. baby sounds ) |
a.
8 yrs old
b.
about 7 yrs old |
a.
No
b.
No
|
|
|
74 |
no |
|
|
|
|
75 |
n/a |
|
|
|
|
76 |
turns towards parents voices |
over 1 year |
No
|
|
|
77 |
cooing, looking, crying normal baby ways |
birth |
No |
|
|
78 |
smiles when she is home and in a familiar place with people she knows |
n/a |
No |
|
|
79 |
follows with eyes, laughs when listening to tv or music |
6mo
|
No
|
|
|
80 |
Yes: n/a |
|
|
|
|
81 |
No
|
|
|
|
|
82 |
No |
|
|
|
|
83 |
smiling, looking around |
when we got him was aware - 4 months |
No
|
|
|
84 |
laughs or cries |
1
yr. |
Yes |
she cries when we take her to respite or Children’s world |
|
85 |
n/a |
|
|
|
|
86 |
By
reacting to others. She's very interactive. |
3
or 4 months |
No |
|
|
87 |
turns toward familiar voices and sounds. moves eyes and appears to be
looking around particularly in new environment, cries for needs to be
met example hungry, soiled diaper. needs new position or wants to be
held |
always has |
n/a |
n/a |
|
88 |
n/a |
|
|
|
