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Physical Development Table of Contents Page

This section of the website contains information on the various aspects of the physical care of a child with Hydranencephaly. It is divided into 5 sections and a Glossary of terms used:

Overview of Cerebral Palsy and Development
  What I've learned about Orthopedic care
  Medical Treatments for Spasticity

 

Orthopedic problems and surgery
  Hips
  Spinal problems
  Cast care
 Orthopedic Surgery Experiences

 

Therapy for a child with Hydranencephaly
Other Types of Therapy

 

Equipment
Positioning Equipment Information
Personal Care: Practical information:
Transportation
Carrying and Lifting
Personal care tips and equipment:
 Bathing
 Bathing equipment
 Beds and sleeping
 Dressing
 Dental care
 Other tips
Sleeping medications

 
Glossary

 

It contains a wide variety of information on the various challenges our kids face and how to help them overcome them and to prevent deformities.

Overview of Cerebral Palsy
Because a child with Hydranencephaly is missing much of their brain their motor function will be similar to someone with severe brain damage. The effects of brain damage that interfere with motor development is often called Cerebral Palsy. I often find it simpler to just say that Kayda has cp. Hydra....is too complicated to explain sometimes. Children with cp may have a variety of orthopedic and other problems. At a very early age your child will be assigned a physical therapist and probably an occupational therapist who will help you learn how to maximize your child's development. The physical therapist works with maintaining range in joints by positioning and stretching. Foot, hand and other splints or braces are often used to maintain range. As your child develops you will probably be introduced to a number of odd looking pieces of equipment such as standing frames or walkers, side lyers, feeding seats etc. They all have a specific purpose. An Occupational therapist will help with choosing equipment. He/she also works on hand use, feeding issues, equipment needs etc. In many ways their roles overlap and complement each other. At first an Early Intervention specialist may also be involved. All these people will help you learn to help your child. They'll help find out what type of toy your child might be most interested in, give suggestions on bathing, what type of recreation would be best for your child etc.

For an overview of what Cerebral Palsy is please see:
http://kidshealth.org/parent/medical/brain/cerebral_palsy.html

Equipment Links
http://static.mda.org/publications/Quest/q42wheel.html
http://www.adaptivemall.com/asteccat.html
Pediatric Wheelchairs: http://www.adaptivemall.com/wheelchairs.html

Strollers & Push Chairs: http://www.adaptivemall.com/allstrolpus.html


 


 

Other pages in this section:
Cerebral Palsy
Orthopedic Considerations
Medical Treatments for Spasticity

Orthopedic Surgery links and resources
Orthopedic Surgery Personal Experiences

Therapy for children with Hydranencephaly
Range of Motion Therapy
Other Types of Therapy

Principals of Positioning
Positioning: Orthotics and Splints
Orthotics and Splints Experiences

Equipment
Wheelchairs
Alternate Positioning
Standers

Personal Care: Practical Information
Practical Care: Transportation
Practical Care: Carrying and Lifting
Sleeping Medications

Glossary

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August 16, 2001- January 12, 2005

This website is funded in loving memory of Jason S. by his mother Kammy

The information on this site is provided by families, caregivers, and professionals who are or have been caring for a child with Hydranencephaly.

Please report any broken links or missing photos to angelbearmom@shaw.ca