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Hydranencephaly Resources in caring for a Child with Hydranencephaly Physical Care of a Child with Hydranencephaly Difficult Times
Pt. 1: Taking Care of You Book: Caring for Your Child With Hydranencephaly
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NewslettersWe have started what will hopefully be a monthly newsletter about Hydranencephaly. If you have a child with Hydranencephaly whose story you'd like to see featured in the Newsletter or if you have a question you'd like answered, please contact me at: angelbearmom@shaw.ca November 2007 Newsletter Question about Baclofen, 2 stories of Children December 2007 Newsletter Remembering our "angels", toys that our kids like January 2008 Newsletter Preventing illness, 2 stories of Children February 2008 Newsletter Illness preparedness, "Little Rooms", 2 stories March 2008 Newsletter School for children with Hydranencephaly, 1 story April 2008 Newsletter Spasticity management pt. 1, Medical treatments and surgery May 2008 Newsletter Spasticity management pt. 2, Therapy, Positioning and Equipment, 1 story
Hydranencephaly Newsletter Mailing list A group has been set up so that you can receive the monthly newsletter via email. Please follow the link to subscribe. |
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August 16, 2001- January 12, 2005 This website is funded in loving memory of Jason S. by his mother Kammy The information on this site is provided by families, caregivers, and professionals who are or have been caring for a child with Hydranencephaly. Please report any broken links or missing photos to angelbearmom@shaw.ca
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