Hydrocephalus Links and Resources

On this page are links to information which is included in the book "Caring For Your Child With Hydranencephaly".

The following information is specific to The Cincinnati Children’s Hospital but will give you a general idea of what will happen should your child need a shunt. Your child’s health care people will give you information specifically for him/her. It is here just for reference purposes.

Hydrocephalus
http://www.cincinnatichildrens.org/health/info/neurology/diagnose/hydrocephalus.htm

Shunts
http://www.cincinnatichildrens.org/health/info/neurology/treat/shunts.htm

Endoscopic Third Ventriculostomy
http://www.cincinnatichildrens.org/health/info/neurology/procedure/endoscopic.htm

This is a surgery I’ve never heard of but found mentioned a lot when I started looking for new information on shunts and hydrocephalus. As far as I know, none of the children with Hydranencephaly have had this surgery. But, that might change in the future so I’m including it just in case.

Cranial Incision Line Care
http://www.cincinnatichildrens.org/health/info/neurology/home/cranial-incision-line-care.htm

Again, this is included just as a guideline and for information purposes. Please check with your child’s health care provider for specific instructions for him/her.

Choroid Plexectomy:

This appears to be an old technique that is sometimes tried in children with Hydranencephaly who have had trouble with shunts. One of the children has had this procedure and it helped him a lot. There is very little available online about it at this point.

Other pages in this section:
Hydrocephalus Information
Hydrocephalus Experiences
Hydrocephalus Glossary 

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