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Myths about Hydranencephaly

Myths Brochure

Dear Doctor Letter

Diagrams of the brain in Hydranencephaly

On this page are several diagrams of the brain and what is often remaining in the brain of a child with Hydranencephaly. They are provided by Dr Bjorn Merker. More explanation will be added as time goes on. They are here just to give people an idea of what could be left and what could be missing. Of course all children are different. 

Diagram 1

Diagram 2

 

 

The following picture is from a series of articles written about one of our children that appeared in the Omaha World Herald in July 2006.Click on the picture to see the page on which it appeared. It gives a really good description of what parts of the brain a child in Hydranencephaly may have in comparison with a typical child. It is used here with permission of the paper. 

 

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August 16, 2001- January 12, 2005

This website is funded in loving memory of Jason S. by his mother Kammy

The information on this site is provided by families, caregivers, and professionals who are or have been caring for a child with Hydranencephaly.

Please report any broken links or missing photos to angelbearmom@shaw.ca