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Hydranencephaly
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Resources in caring for a Child with Hydranencephaly

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Difficult Times Pt. 1: Taking Care of You

Difficult Times: Pt 2: What If?

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Book: Caring for Your Child With Hydranencephaly

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Fact Sheet

Fact Sheet Brochure

Frequently Asked Questions

FAQ Brochure # 1

FAQ Brochure # 2

FAQ Brochure # 3

FAQ Brochure # 4

FAQ Brochure # 5

FAQ Brochure # 6

FAQ Brochure # 7

Myths about Hydranencephaly

Myths Brochure

Dear Doctor Letter

Awareness Ribbons

Help us raise awareness of Hydranencephaly by purchasing a magnetic car ribbon and displaying it on your vehicle. The cost is $3.00 US which includes shipping and handling. Click on the above link to purchase a ribbon. 

Or via snail mail to:
Jeanene Headlee
9211 N. Condor Place
Tucson, AZ  85742
USA

 

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August 16, 2001- January 12, 2005

This website is funded in loving memory of Jason S. by his mother Kammy

The information on this site is provided by families, caregivers, and professionals who are or have been caring for a child with Hydranencephaly.

Please report any broken links or missing photos to angelbearmom@shaw.ca