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Hydranencephaly
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Frequently Asked Questions

FAQ Brochure # 1

FAQ Brochure # 2

FAQ Brochure # 3

FAQ Brochure # 4

FAQ Brochure # 5

FAQ Brochure # 6

FAQ Brochure # 7

Myths about Hydranencephaly

Myths Brochure

Dear Doctor Letter

Equipment:
Standers

Snug Seat Giraffe Stander
http://tinyurl.com/6vqln*
Designed to be a child’s first stander, the GIRAFFE easily changes from supine, to prone, to upright enabling your child to follow a comprehensive standing therapy program.

Heather is in a Leis Tech Supine stander
http://tinyurl.com/5xwbr *

Kayda is in a Rifton Supine Stander
http://www.adaptivemall.com/risubo.html

Megan is in a Leckey Prone Stander

http://www.adaptivemall.com/lecpronstan.html

Nikki is in a Tumble Forms Tri Stander
http://www.adaptivemall.com/sitenavigation.html

Noah is in a Jenx Monkey Stander http://www.jenx.com/us/products/monkey.html

They have other standers on their web page in addition to this one.

Chrissy & Junior are both in the Super Stand by Prime Engineering.

http://tinyurl.com/5elnc*

Both families love this stander. From the website it looks like this stander can also be used as a prone stander

 

 

*This address has been shortened by tiny url but leads to the website concerning this piece of equipment. You will see the actual address when you get to the site.

Other pages in this section:
Cerebral Palsy
Orthopedic Considerations
Medical Treatments for Spasticity

Orthopedic Surgery links and resources
Orthopedic Surgery Personal Experiences

Therapy for children with Hydranencephaly
Range of Motion Therapy
Other Types of Therapy

Principals of Positioning
Positioning: Orthotics and Splints
Orthotics and Splints Experiences

Equipment
Wheelchairs
Alternate Positioning

Personal Care: Practical Information
Practical Care: Transportation
Practical Care: Carrying and Lifting
Sleeping Medications

Glossary

 

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August 16, 2001- January 12, 2005

This website is funded in loving memory of Jason S. by his mother Kammy

The information on this site is provided by families, caregivers, and professionals who are or have been caring for a child with Hydranencephaly.

Please report any broken links or missing photos to angelbearmom@shaw.ca