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Myths about Hydranencephaly

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Dear Doctor Letter

Equipment:
Alternate Positioning

There are a wide variety of "alternate" positioning devices for your children. On this page are pictures of a few that are used by children with Hydranencephaly.

Chrissy is in a Feeder Seat by Tumbleforms
http://www.adaptivemall.com/tumforfeedse.html
The feeder seat is one of the most useful alternate seating device. They also have a Carrie Car Seat which is similar (see car seats) as well as a mobile base such as the one that Chrissy’s seat is in.

Noah is in a “corner” seat.

Special Tomato MPS Chair
http://www.adaptivemall.com/specialtomato.html

This seat allows your child to be in different positions.

Special Tomato Soft Touch sitters

http://www.adaptivemall.com/sptososi.html
These are a new version of the Tumble Form feeder seats (they’re made by Tumble Forms as well)

Junior is a Rifton Positioning Chair
 
http://tinyurl.com/6694z

Noah is in a Hopsadress. This is a special swing used with the active learning program by Dr Lilli Neilsen. To see more info on Active Learning and the Hopsadress go to: http://www.capedu.com.au/pages.asp?page=11

Junior is in a Teekoz harness. I was unable to find any real information on it online

Tumble Forms high back swing
http://www.adaptivemall.com/sphibasw.html

 

MSS Tilt & Recline Chair
http://www.adaptivemall.com/wenmed.html

One of the families has just purchased this chair. It looks good as a alternate seat

 

 Other pages in this section:
Cerebral Palsy
Orthopedic Considerations
Medical Treatments for Spasticity

Orthopedic Surgery links and resources
Orthopedic Surgery Personal Experiences

Therapy for children with Hydranencephaly
Range of Motion Therapy
Other Types of Therapy

Principals of Positioning
Positioning: Orthotics and Splints
Orthotics and Splints Experiences

Equipment
Wheelchairs
Standers

Personal Care: Practical Information
Practical Care: Transportation
Practical Care: Carrying and Lifting
Sleeping Medications

Glossary

 

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August 16, 2001- January 12, 2005

This website is funded in loving memory of Jason S. by his mother Kammy

The information on this site is provided by families, caregivers, and professionals who are or have been caring for a child with Hydranencephaly.

Please report any broken links or missing photos to angelbearmom@shaw.ca