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Frequently Asked Questions

FAQ Brochure # 1

FAQ Brochure # 2

FAQ Brochure # 3

FAQ Brochure # 4

FAQ Brochure # 5

FAQ Brochure # 6

FAQ Brochure # 7

Myths about Hydranencephaly

Myths Brochure

Dear Doctor Letter

Contact a Family

The following families have offered to provide information and support

USA

AL
Holly -  obsessed_22@yahoo.com  
256-829-0730

Alaska
Ildi - ildi_nylen@yahoo.com 
907-463-1241

AZ
Jeanene - jeanenehea@comcast.net 
520-575-9229 or 520-256-2066

CA
Regina: bsbalfam@aol.com or
reginacriner@yahoo.com 
661-758-9292.

Renee: reneemt@comcast.net 
(310) 530-7318

CO
Nancy - momnancyring@aol.com 
970-785-6188 (home) 970-396-7297 (cell)

FL
Dee Dee Daniels- frumpfrog@aol.com 
850-862-4067

IN
Rachael Ginder- rgin@ahol.com
 

PA
Karen - karen.l.krueger@verizon.net 610-933-3254

NY
Danielle Shano: lildudet1969@yahoo.com 

Jolene Pregent- chiapug74@yahoo.com 
518-756-7679 7 am-10 pm
48 Schoolhill Rd.
West Coxsackie, NY 12192

TX
Donald White- kyana@wt.net  
936-661-5974

Canada:

Alberta:
Patricia Wheatley - pjwheatley@shaw.ca 
403-251-9855.

British Columbia:
Barb - angelbearmom@shaw.ca

Germany:
Georg Paassen, Essen, NRW, Germany
georg@hydranenzephalie.araneae-online.net
 

Tasmania:
Lisa - lisajking@hotmail.com
169 Abbott Street
Newstead
Tasmania 7250
Australia
ph (03) 6343 3086

U.K.

Diane -  MIDIJOSHUA@AOL.COM

 

If you would like to have your name listed here in order to offer support to new families please contact Barb

 

 

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August 16, 2001- January 12, 2005

This website is funded in loving memory of Jason S. by his mother Kammy

The information on this site is provided by families, caregivers, and professionals who are or have been caring for a child with Hydranencephaly.

Please report any broken links or missing photos to angelbearmom@shaw.ca