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Hydranencephaly Resources in caring for a Child with Hydranencephaly Physical Care of a Child with Hydranencephaly Difficult Times
Pt. 1: Taking Care of You Book: Caring for Your Child With Hydranencephaly Printed Materials |
Suggestions For Including Our Children As Inclusion seems to be the philosophy that is the most popular these days for children with special needs, I’m including information in this section on how to make inclusion work for your child. Most of the information comes from a book put together in my area called Inclusive Education, A Parent Handbook by the BC Association For Community Living.
Building a Partnership With the
School Start with the assumption that you are an equal partner in your child’s education. This means that each partner has equal status, even though everyone may not have an equal amount of knowledge in all areas or an equal amount of education. You might not have a background in education but you do know your child. You are the expert and as such you should be an important part of the school’s efforts to provide your child with an educational program that will meet his or her individual needs. Establish an Identity at Your
School: If you are unable to volunteer at the school, make yourself known to key people and students. Phone, or ask to be phoned with concerns, write notes, send goodies, be at meetings and student conferences. Get across the message that you are approachable and available for consultation on behalf of your child. Act as a Resource for Teachers: Explore Methods of Communication: Establish Natural Supports for your
Child: Be Patient: Inclusive Education, A Parent Handbook, British Columbia Association for Community Living Pp 17-18 Interviewing the Principal
It is a good idea to meet the school principal
six to eight months before integrating your child with exceptional needs into
your neighborhood schoolRemember:
1. You are interviewing the principal to decide if you want your child to attend this school.
2. You may take a partner to assist with debriefing, overall impressions and confirming details.
3. You should take notes and, if appropriate, or necessary, confirm expectations in writing.
4. Try and assess how interested the principal is. For example, does s/he ask questions about your child?
5. Let the principal know that you intend to be involved in the placement decision of your child.
Questions to Ask Your Principal:These are a list of suggested questions only. You may not need or want to ask them all. They can help you think about what you want to know before your child’s first day of school.
Planning for Entry:
· How will staff and students be prepared for my child? · What are (would by) your plans for integrating my child? · Can you get release time for your staff to visit my child in his/her former school/preschool/daycare? · Do teachers and teaching assistants get release time for in-service and meeting times? · Who will be the person assigned to coordinate my child’s program and coordinate supports on behalf of my child? · Is the school physically accessible? (if appropriate) · Is there appropriate equipment for my child to use, given his/her limitations? (if appropriate). · What lead-time does the school require to plan for my child’s entry? Philosophy:
· What is the philosophy/attitude of the staff and school towards inclusion? How is that carried out in the school’s day-to-day activities? · What experience has the school had with including children with special needs? · What is the general philosophy regarding parent involvement in the school? · If issues arise regarding my child’s program, how would they be resolved? · What are the lines of communication if a concern arises? Principal:
· Will you be here next year? When do you expect to be transferred? · Will you come and observe my child in his/her school/preschool/daycare? · Have adequate records been forwarded to you? · Will the teacher be given my child’s file in time to prepare for my child’s start date? I would be please to talk with the teacher regarding anything in the file. Classroom Situation: · What would an average day look like for my child? · Are students fully integrated in all classes? · Does inclusion mean academic subjects as well as non-academic subjects? · How is the time spent when a child is not fully integrated? Is it spent furthering their ability to be integrated or on life skills training? · Do you have a buddy system/peer support for social situations? · Do you have a buddy/peer tutor program for ‘academic’ activities? · How is discipline handled? What kinds of situations would be considered appropriate for discipline? · Can we (including our child) tour the school? · Are we welcome to visit our child any time while s/he is attending school? · Can we meet the classroom teacher? When? · Can we meet with the classroom assistant? When? (if applicable) · Does anyone know sign language? (if appropriate) · How do you accommodate IEP meetings? · Are parents encouraged to be involved in the IEP? · Is the program designed around my child’s needs? Playground/Extra Curricular Activities: · How will my child be cared for at recess and lunch? · Is there after-school care? · Is the playground safe for my child? · Will there be someone to support my child while attending extra-curricular activities? Getting Involved:
· Can we attend a parent meeting before our child begins school? · Can you put us in touch with other parents of children with special needs? · What can we do to assist the teacher in educating our child?
Personal note: Reading through these questions makes me realize how dumb I was to not do something like this or catch
the warning signs before Kayda started Grade 1 at her first school. I would have seen then that it wouldn’t be a good
situation for her. Back then, though I believed that the teachers and school people were right and knew more than
I did about what was best for Kayda. Eleven years later, I’m a bit wiser and more wary. I plan to do just what is
suggested in this book before choosing a high school for Trevor.
Inclusive Education: A Parent Handbook, BC Association for Community Living, pp 19-21
The use of IEP’s for special education students is recommended in B.C. by the Ministry of Education’s Student Support Services Branch. An IEP Should be:
Preparing for an IEP Meeting: IEP meetings may be held as often as two or three times a year. The initial meeting is usually held after the teacher has had a chance to get to know your child, (maybe six weeks into the school year), or as a transition planning meeting before the school year. Follow up meetings may coincide with regular reporting periods at the school. What is important is that you know and agree with how often they are held. An important point to consider when
planning for a transition into another school year is that planning may involve
establishing certain support services for your child. Districts will have to
prepare their budgets for the following school year early in the current
calendar year to meet Ministry deadlines. Therefore, transition-planning
meetings should take place in time to prepare recommendations for services
before the school budget is prepared.
Obtaining a
copy of the IEP may require a follow up letter of phone call. Make sure the
written report accurately reflects your position, and the date and information
is correct. Review the goals with the following in mind. Phone or respond in writing if you have a disagreement with the written report, asking for clarification or other details to be included. No response will imply you are satisfied. Also respond when a report appears accurate. Be open to revision. Inclusive Education, A Parent Handbook, British Columbia Association for Community Living, pp 22-25 School Back to Resources Table of Contents Page
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August 16, 2001- January 12, 2005 This website is funded in loving memory of Jason S. by his mother Kammy The information on this site is provided by families, caregivers, and professionals who are or have been caring for a child with Hydranencephaly. Please report any broken links or missing photos to angelbearmom@shaw.ca
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