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Hydranencephaly Resources in caring for a Child with Hydranencephaly Physical Care of a Child with Hydranencephaly Difficult Times
Pt. 1: Taking Care of You Book: Caring for Your Child With Hydranencephaly Printed Materials |
Structural
Cognitive Modifiability This is a program endorsed by the Grandfather of one of our children (Jason S.) and is presented here for your information only.
At this time we do not have experience with children who exhibit as much brain loss as some of the hydran children. Myron and Kammy intend to try with Jason as soon as his situation becomes more stable. Here are a few examples of how this
theory works as suggested for Jason and his mother Kammy. We want to help a child to create connections in their brains. When we stimulate a child by providing him or her with a sound, that child will demonstrate that the sound has been heard by a reaction. If the reaction involves the eyes looking around then the child is trying to associate the auditory stimulation with something. You can help the child to make the association. If you are using a stethoscope then you should position yourself direction in front of the child and as you emit a sound, say humming a tune, you should also make some kind of shape with your mouth. Then do this at varying distances from the child. If you see the child trying to mimic your mouth position, you will have evidence that the child is making a connection. If you see an attempt to mimic what you do with your mouth, then repeat that many times-100 is not too many times! Making neural connections denotes learning. I suspect (but cannot prove) that the differences in the amount of brain affect the speed of learning but (within limits) not how much can be learned. I repeat, this is not a scientifically verified theory-just a private hypothesis..
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August 16, 2001- January 12, 2005 This website is funded in loving memory of Jason S. by his mother Kammy The information on this site is provided by families, caregivers, and professionals who are or have been caring for a child with Hydranencephaly. Please report any broken links or missing photos to angelbearmom@shaw.ca
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