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Hydranencephaly
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Resources in caring for a Child with Hydranencephaly

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Difficult Times Pt. 1: Taking Care of You

Difficult Times: Pt 2: What If?

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Fact Sheet Brochure

Frequently Asked Questions

FAQ Brochure # 1

FAQ Brochure # 2

FAQ Brochure # 3

FAQ Brochure # 4

FAQ Brochure # 5

FAQ Brochure # 6

FAQ Brochure # 7

Myths about Hydranencephaly

Myths Brochure

Dear Doctor Letter

Resources in caring for a Child With Hydranencephaly

Table of Contents Page

On this page are links to pages with information on caring for your child and helping them to grow and develop. Please check back frequently to see newly added information. 

Vision in a child with Hydranencephaly

 

Communication for a Child With Hydranencephaly

Sensory Stimulation

School for a child with Hydranencephaly

 

Planning for Emergencies

Tips and Tricks Families Have Learned

Resources You May Find Useful

 

Cerebral Palsy/Physical Care of a Child With Hydranencephaly

Feeding a child with Hydranencephaly

 

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August 16, 2001- January 12, 2005

This website is funded in loving memory of Jason S. by his mother Kammy

The information on this site is provided by families, caregivers, and professionals who are or have been caring for a child with Hydranencephaly.

Please report any broken links or missing photos to angelbearmom@shaw.ca